ASHAWire
Advanced search
Skip main navigation
Close Drawer MenuOpen Drawer Menu
No AccessAmerican Journal of AudiologyResearch Article1 Mar 2014

State and Territory EHDI Databases: What We Do and Don't Know About the Hearing or Audiological Data From Identified Children

    https://doi.org/10.1044/1059-0889(2013/13-0015)

    Abstract

    Purpose

    The purpose of this study was to define the information currently collected by state and territory Early Hearing Detection and Intervention (EHDI) coordinators and to determine whether best practice guidelines are used.

    Method

    A multiple-choice electronic survey querying areas of diagnostic assessment, amplification, early intervention (EI) and medical information regarding hearing loss was sent to all state and territory EHDI coordinators.

    Results

    Seventy percent of surveys were completed. Diagnostic, amplification, and Part C services were tracked by the majority of respondents. Additionally, medical prenatal and postnatal risks were collected.

    Conclusion

    Data collected on audiologic screening and diagnostic evaluations has increased. On the basis of these results, it is difficult to discern whether best practices are being used for each child. A delay in reporting a confirmed hearing loss was observed. Amplification results suggest that systems are not in place to ensure consistency and accountability for fitting amplification in infants. The results of this survey identified audiologic and EI information tracked by states to help provide a framework to monitor quality care in the future.

    References

    • American Academy of Audiology. (2003). Pediatric amplification protocol [PDF]. Retrieved from www.audiology.org
      Google Scholar
    • American Academy of Audiology. (2012). Audiologic guidelines for the assessment of hearing in infants and young children [PDF]. Retrieved from www.audiology.org
      Google Scholar
    • Apuzzo, M., & Yoshinaga-Itano, C. (1995). Early identification of infants with significant hearing loss and the Minnesota Child Development Inventory.Seminars in Hearing, 16, 124–139. doi:10.1055/s-0028-1083710
      CrossrefGoogle Scholar
    • Arehart, K. H., Yoshinaga-Itano, C., Thomson, V., Gabbard, S. G., & Brown, A. S. (1998). State of the states: The status of universal newborn hearing screening, assessment and intervention systems in 16 states.American Journal of Audiology, 7, 101–114. doi:10.1044/1059-0889(1998/019)
      ASHAWireGoogle Scholar
    • Bentler, R., & Holte, L. (2012, September). Outcomes of children with hearing loss (OCHL) study update. Iowa Symposium on Hearing Loss: Impact on Children and Their Families, Ankeny, IA.
      Google Scholar
    • Bess, F. H., & Paradise, J. L. (1994). Universal screening for infant hearing: Not simple, not risk-free, not necessarily beneficial, and not presently justified.Pediatrics, 958, 330–334. Retrieved from http://pediatrics.aappublications.org
      Google Scholar
    • Centers for Disease Control and Prevention. (2010). Hearing loss in children [Data and statistics]. Retrieved from www.cdc.gov/ncbddd/hearingloss/data.html
      Google Scholar
    • Centers for Disease Control and Prevention. (2011). Annual Data Early Hearing Detection and Intervention (EHDI) Program [Data and statistics]. Retrieved from www.cdc.gov/ncbddd/hearingloss/ehdi-data.html
      Google Scholar
    • Guo, L. Y., & Moeller, M. P. (2010, November). Outcomes of children with mild to severe hearing loss. Paper presented at the Annual Convention of the American Speech-Language-Hearing Association, Philadelphia, PA.
      Google Scholar
    • Johnson, L., Thomson, V., & Yoshinaga-Itano, C. (2011). Colorado newborn hearing evaluations 2008–2009: An analysis of the reported procedures for initial diagnosis of hearing loss. Paper presented at the Early Hearing Detection and Intervention Conference, Atlanta, GA.
      Google Scholar
    • Joint Committee on Infant Hearing (2000). Year 2000 position statement: Principles and guidelines for early hearing detection and intervention programs.Pediatrics, 106, 798–817. Retrieved from http://pediatrics.aappublications.org
      CrossrefMedlineGoogle Scholar
    • Joint Committee on Infant Hearing (2007). Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs.American Academy of Pediatrics, 120, 898–921. doi:10.1542/peds.2007-2333
      Google Scholar
    • Kennedy, C. R., McCann, D. C., Campbell, M. J., Law, C. M., Mullee, M., Petrou, S., & Stevenson, J. (2006). Language ability after early detection of permanent childhood hearing impairment.New England Journal of Medicine, 35, 2131–2141. doi:10.1056/NEJMoa054915
      CrossrefGoogle Scholar
    • McCann, D. C., Worsfold, S., Law, C. M., Mullee, M., Petrou, S., Stevenson, J., … Kennedy, C. R. (2009). Reading and communication skills after universal newborn hearing screening for permanent childhood hearing impairment.Archives of Disease in Childhood, 94, 293–297. doi:10.1136/adc.2008.151217
      CrossrefMedlineGoogle Scholar
    • Moeller, M. P. (2000). Early intervention and language development in children who are deaf and hard of hearing.Pediatrics, 106, e43. doi:10.1542/peds.106.3.e43
      CrossrefMedlineGoogle Scholar
    • National Center for Hearing Assessment and Management. (2003). Part C Early Intervention Eligibility for Infants and Toddlers with Hearing Loss. Retrieved from www.infanthearing.org/earlyintervention/eligibility.pdf
      Google Scholar
    • National Center for Hearing Assessment and Management. (2011). The “state” of early hearing detection & intervention in the United States. Retrieved from www.infanthearing.org/states_home/index.html
      Google Scholar
    • National Center for Hearing Assessment and Management. (2013). Hearing aid legislation. Retrieved from www.infanthearing.org/legislation/hearingaid.html
      Google Scholar
    • The National Early Childhood Technical Assistance Center. (2012). Part C eligibility. Retrieved from www.nectac.org/topics/earlyid/partcelig.asp
      Google Scholar
    • Vohr, B., Jodoin-Krauzyk, J., Tucker, R., Johnson, M. J., & Topol, D. (2008). Early language outcomes of early-identified infants with permanent hearing loss at 12 to 16 months of age.Pediatrics, 122, 535–544. doi:10.1542/peds.2007-2028
      CrossrefMedlineGoogle Scholar
    • White, K. R., Forsman, I., Eichwald, J., & Munoz, K. (2010). The evolution of early hearing detection and intervention programs in the United States.Seminars in Perinatology, 34, 170–179. doi:10.1053/j.semperi.2009.12.009
      CrossrefMedlineGoogle Scholar
    • Yoshinaga-Itano, C. (2011, November). Rethinking progressive hearing loss. Paper presented at the Centers for Disease Control EHDI Teleconference.
      Google Scholar
    • Yoshinaga-Itano, C., Baca, R. L., & Sedey, A. L. (2010). Describing the trajectory of language development in the presence of severe to profound hearing loss: A closer look at children with cochlear implants versus hearing aids.Otology & Neurotology, 31, 1268–1274. doi:10.1097/MAO.0b013e3181f1ce07
      CrossrefMedlineGoogle Scholar
    • Yoshinaga-Itano, C., Sedey, A., Coulter, D. K., & Mehl, A. L. (1998). Language of early and later identified children with hearing loss.Pediatrics, 102, 1161–1171. Retrieved from http://pediatrics.aappublications.org
      CrossrefMedlineGoogle Scholar

    Additional Resources